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European Patients Academy

EUPATI UK Network Key Stakeholders Conference

EUPATI-UK network event sparks great interest and discussion

Over 60 people representing key stakeholders in patient and public involvement in UK health attended our national liaison team’s first network event hosted by the Dean of Leeds University. A full program of speakers raised the profile of the project on a country level and sparked discussion on how the UK can gain from EUPATI. The goal of this first network conference on 6 March 2014 was to provide an overview of the European Patients Academy and our goals. In addition, by bringing together key stakeholders in the UK interested in patient and public involvement in health, we emphasised what can be gained from EUPATI and showed how effective partnerships can be fostered.

Timing was perfect as attendees were able to learn more about the Expert Patient training course and application process which had opened the day previous, but also invited to shape the draft glossary of terms drawn from content developed for the course.

The event was reported throughout the day on social media with headline statements being shared, generating a large virtual following on twitter!

An important factor was the opportunity for people to engage with the European Patients Academy and network to discuss similar experiences.

Slide presentations from the event are available below with video recordings to be uploaded soon. A report on this event will be provided at the NLT workshop on April 3 in Warsaw.

Web streams will become available of some presentations! Please click on each presentation below to see the slides, or on the “Slideshare” logo to view them in larger size.



Sue Pavitt
Co-Academic Lead of EUPATI-UK
Senior Management Committee, Reader in Applied health Research, University of Leeds

Introduction to EUPATI UK

Irene Oldfather
Chair of EUPATI-UK
Senior Management Committee and Director – Health and Social Care Alliance Scotland

EUPATI – EU: An overview

Eibhlin Mulroe
Chief Executive IPPOSI Irish Platform for Patients’ Organisations, Science and Industry

Brief overview of Patient involvement in medicines development – beliefs, attitudes and knowledge of different stakeholders

Bella Starling, Co-Academic Lead of EUPATI-UK
Senior Management Committee and Director of Public Programmes
Nowgen, University of Manchester

Suzanne Parsons, EUPATI Work Package 3 Project Manager
Nowgen, University of Manchester

Bringing the patients’ voice into clinical research – working with industry and academia to deliver medical research and patient benefits

Richard Stephens
Chair of the National Cancer Research Institute (NCRI) Consumer Liaison Group

INVOLVE perspectives on learning and development and the importance of public involvement for patients and the NH

Sarah Buckland
Director of the INVOLVE Coordinating Centre

Patient’s at the centre of Health Research – Patient, Carer and Public Involvement In NICE Decision-making

Victoria Thomas
Associate Director: Public Involvement Programme, National Institute for Health and Care Excellence(NICE)

Networking Session Open

Professor Paul Stewart
Dean of the School of Medicine University of Leeds

Scottish Dementia and experience of working with the SHARE project and involvement of people with long term conditions

Emma Law
Manager The Scottish Dementia Clinical Research Network

Bringing the patient voice into GlaxoSmithKline for educational, awareness and patient centred decisions within medicine development

Kay Warner
Global Manager, Focus on the Patient, GlaxoSmithKline

Patient involvement in clinical research and long term conditions -what can be achieved by working in partnership

Dr. J. Paul Schofield
Medical Director Napp Pharmaceuticals Limited, representing the Association of the British Pharmaceutical Industry (ABPI) Medical Expert Network (MEN) and Patient Organisations Forum (POF)

Working with a children and teenagers to shape research –reaping the benefits and the importance of education in this setting

Jenny Preston
Medicines for Children Research Network Coordinating Centre, University of Liverpool

Building Research Partnerships- Shared learning for professionals  and members of the public:  supporting patient and public involvement (PPI) in health and social research

Jack Nunn
Public involvement learning and development , Macmillan Cancer Support

EUPATI Training  course: introduction to application process

Kay Warner
Industrial Lead of EUPATI-UK Senior Management Committee