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European Patients Academy

Sara Hunt

Sara Hunt is the founder and Chief Executive Officer of ALD Life, a charity supporting sufferers of the rare, terminal, and genetic brain disorder adrenoleukodystrophy (ALD). Sara has a professional background in administration, accountancy and desktop publishing, as well as personal experience of all aspects of the disorder. Sara is also a patient voice member of the Metabolic Disease Clinical Reference Group, NHS England, and is involved in various other patient advocate organisations in the UK.