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European Patients Academy

Susan Walsh

Susan Walsh has over 14 years experience of working for patients’ organisations following on from a career in biomedical research. She is the director of Primary Immunodeficiency UK and Head of Research and Specialist Services at the CGD Society and is a patient representative on the UK Gene Testing Network Clinical and Scientific Advisory Group, NHS Scotland National Plasma Product Expert Advisory Group, and the NHS Clinical Reference Group and Immunology and Allergy. Her specialist area of interest is in genetic conditions that affect the way the immune system works and that leave people highly vulnerable to infections from microbes that healthy people can normally recover quickly from.

“As a patient advocate I joined EUPATI so that I could be better armed with knowledge to tackle the issue of access to medicines for the patient community I represent and to empower and inform other patients about how they can get involved.”